Today marked the completion of my 34th trip around the sun.
I spent the day at home due to fatigue and just generally not feeling great due to this latest IV medication I’m on. One of my sisters was able to make it down from near Seattle though which was a cool surprise!
Here’s hoping my health issues are behind me when 35 rolls around. I certainly didn’t expect to still be dealing with this crap at this point.
I really can’t catch a break, can I?
My latest BCR-ABL blood test that detects my cancer’s genetic mutation came back ever so slightly positive (like 0.01%). This isn’t a relapse but rather just some pesky cancer cells that refuse to take a hint.
To treat this, I will be taking a very specialized drug called Blinatumomab. It’s administered as a continuous 28 day drip which means I’ll have to carry around a portable IV pump. I’ll then get a 2 week break before a second 28 day infusion. If I’m disconnected from the pump for more than 4 hours, I may have to start the whole 28 day cycle over again. What a pain.
This Sunday I’ll be admitted to the hospital for 3 or 4 days of monitoring to make sure that I don’t have any negative reactions to the medication.
As for my vision issues, depressingly there hasn’t really been any improvement. If anything I’ve gotten more blind spots that make it hard to see things that I’m directly looking at.
I’ve been unable to work or drive, both of which I desperately want to do. I’m having a really tough time with the thoughts of things never improving past where they are now.