Hospital, Day 34

34 days and I’m still in the hospital. It’s boring, but necessary for my treatment unfortunately. Lots of bad days, especially this past week, but some aren’t quite as bad as the rest.

Today I had a crazy procedure where they got a biopsy of my liver by going through my jugular vein so that in case I bled (I bleed easily due to low platelet count), it was into my bloodstream and not into my body. It was all painless of course due to local numbing agents, but still very weird.

Tomorrow I get yet more chemotherapy drugs which will probably make me feel like crap but it is what it is.

Hospital, Day 23

I had a bone marrow biopsy done on Tuesday and the results came back today saying that the current chemotherapy treatment hasn’t been as effective as hoped. I came into the hospital at about 95% infection and my oncologist had hoped to see it down to as low as 5% now (they’re aggressively treating it) but unfortunately it’s still around 50%.

While not good news, it’s not really bad news either. It’s just news and means a change in chemo regiment. Rather than my weekly chemo treatments, I’ll be getting different chemo drugs starting tomorrow for 3 days and then mostly nothing for 3 weeks. These new drugs are stronger and have more potential side effects but like before, the nurses can preemptively counter and monitor those.

Unfortunately this also means at least an additional week in the hospital on top of the two weeks I already had to go. That’s probably the part that sucks the most honestly. It sucks being cooped up in the hospital, even with Netflix and video games. The food is fine, but I’m getting sick of eating the same things and there’s rules about outside foods due to risk of infection.

One day at a time though. 🙂

Hospital, Day 21

Today marks the 21st day of being in the hospital for leukemia. I’m feeling much better than that week before I checked into the ER but the weekly chemo drugs they give me can really zap my energy. Thankfully they pre-drug me to counter the effects, but there’s only so much you can do to keep yourself busy.

I’ve been watching lots of TV and thanks to about 15 amazing friends, I have a gaming laptop and HTC Vive VR headset to keep me busy when I have the energy and mental togetherness.

Lots of awesome friends and family have been making sure I have everything I need, so really it’s just waiting game based on test results. If all goes well, I could be getting out of here in a little more than 2 weeks! Fingers crossed.